Somewhere out there are a group of very brave people. My fellow warriors. They understand my reality. They understand that which I go through on a daily basis. They live it. And quite frankly, it is hell.
Today it was bad brain fog. light-headedness. Pain in my R shoulder, hip and knee. Stiffness. It took everything just to accomplish what I was supposed too. Stay on track. I needed support, but when the family came home, there was none offered. They took what they needed oblivious to the fact that today I don’t have anything to offer. Today I needed someone to help me. So even when you aren’t alone with this disease you still have days without support. Without just a little bit of help. Someone to talk too.
Tonight, it is severe pain and pain pills. And yes, this is a flare. I am always ill but I have worse days. Or is it just a constant flare that has worse days?? On comes the hot flash. Is it the meds, the RA or what? I am too young for those but I get so hot and sweat. Tonight will probably be night sweats too. Pain. Tossing and turning. Little sleep.
But I am not alone! I have you my fellow warriors. You are going through the same but yet different right at this very moment and you know what I mean when I say it’s the same but different. We may not be in the same room. We may have never met and may never actually meet in person. But we are there for each other. So in moments when I feel alone and need just one person to ask how I am and no one does, I turn to my web of online support. Or I write in my blog. And I try to reach out to you who is going through this hell with me. Somewhere out there is you. And I am here for you too. We are together. We are strong.